What is the HEALTHIER TOGETHER Cancer Data Tool?
The Healthier Together Cancer Data Tool makes it easy for you to share your information and help inform Alberta Health Services’ health programs. You just have to install the app and answer a few questions at a time.
The Healthier Together Cancer Data Tool is an initiative of Alberta Health Services and it is one tool AHS is using to gather information from everyday Albertans about their health, lifestyles, and supportive community environments. The information collected through the tool is used to plan programs and other activities aimed at improving the health of Albertans now and for future generations.
Why should I use the tool?
Our goal is to use the Healthier Together Cancer Data Tool to provide your community with information about the health, wellness, and lifestyles of people in your community. Your community can use this information to support decision-making and
You can use the app to tell us about:
- Aspects of your community that are positive (e.g. parks)
- Aspects of your community that need improvement (e.g. access to affordable, healthy food)
- Information about your health, wellness and lifestyle choices
- Information about how the health services in your community are use
What happens to the information that you provide?
You get to control your information and you can provide as much or as little of it as you like. It’s up to you. The information that you choose to provide may be used by community organizations, associations, and health service providers in order to make decisions about how best to improve health in your community, like what kinds of services to offer or what health concerns to prioritize.
How Much Time Will It Take?
It’s up to you. There are no more phone calls interrupting you at dinner or lengthy surveys sent in the mail. After you download the Healthier Together Cancer Data Tool, you get to choose when and how often you want to provide your information. You can spend as little as 1 or 2 minutes every couple of days or, if you prefer, you can spend a few more minutes and only answer questions once a week. Whatever you choose, by giving just a few minutes of your time you can help Alberta prevent cancer.
1. What if I need more assistance downloading and using the app?
Please contact Brian Hansen at firstname.lastname@example.org.
2. Who are the principal research investigators in this study?
- Vineet Saini
PhDDVM, Scientist Lead, Research and Innovation, Alberta Health Services 403.955.0857, email@example.com
- Nathaniel Osgood
PhD, Associate Professor, Computer Science, University of Saskatchewan 306.966.6102, firstname.lastname@example.org
- Melissa Potestio,
PhD, MSc, Research/Surveillance Lead, Alberta Cancer Prevention Legacy Fund, 403.690.4721, Melissa.Potestio@albertahealthservices.ca
3. How is this study funded?
The funding of this study is provided by Alberta Cancer Prevention Legacy Fund at Alberta Health Services.
4. How will I benefit if I take part in this study?
The direct benefit will be your access to the online dashboard, which provides you with your health profile (e.g. physical activity level, sedentary
5. Do I have to participate in this study?
Your participation in this pilot study is voluntary. You may withdraw from the study at any time and
6. What else does my participation involve?
There is no other involvement required, beyond what is previously stated in this document.
7. Will I be paid for participating, or do I have to pay anything?
No, there are no monetary incentives or honorariums that will be paid to you, nor do you have to pay for anything in this study.
8. Will my records be kept private?
Yes, any information that we collect about you during the pilot study will be kept confidential. Only you and those in the research team will be able to access your information. Data from all participants will be combined and results of individuals will not be presented. Only aggregate data will be presented. Any information published or presented regarding this study will be anonymous and will not contain your name.
If you wish to withdraw, please notify study organizers immediately. If you withdraw at any time during or after data collection, all related data will be destroyed.
9. If I suffer a research-related injury, will I be compensated?
In the event that you suffer injury as a result of participating in this research, no compensation will be provided to you by the University of Calgary, Alberta Health Services, or the Researchers. You still have all your legal rights. Nothing said in this consent form alters your right to seek damages.
About Our Study
The Alberta Community Health Survey is conducted every year by Alberta Health Services for the collection of health information in Alberta. This survey is conducted using the
With an increase in the use of smartphones, there are many smartphone apps that can collect a wide variety of health information. the Healthier Together Cancer Data Tool is one such health monitoring app designed by the University of Saskatchewan and currently being used for the collection of health data in North America. The app can automatically record health information in terms of physical activity and location using sensors in the
The Healthier Together Cancer Data Tool will periodically send you surveys containing health-related questions. The first set will ask questions mainly related to your personal wellness, physical activity, fruit and vegetable consumption and knowledge about cancer prevention etc. This set of questions will also contain simple demographic questions (e.g. your age, sex, education, and income etc.). The second set of questions will be around understanding reasons for some of the responses to the questions in the first set. Some questions will also be asked to understand your comfort/discomfort and satisfaction with using the Healthier Together Cancer Data Tool as a health information collection tool. In general, no sensitive questions will be asked.
The surveys will pop-up automatically on your phone, and you can respond when it’s convenient for you. When a new survey arrives, you will be notified the same as you would be notified of a new email or a text message. You can choose to answer any or all of the questions right away, or at a later time.
In order to suspend health information collection, simply open the Healthier Together Cancer Data Tool and click on the snooze button at the top of the app. This will suspend data recording for the amount of time indicated on the screen. To suspend it longer, simply tap again. When the phone is snoozed, nothing is recorded. If you choose to leave your phone behind without snoozing this will provide us with incorrect data, which could bias our results.
This study also involves, with your permission, the recording of your location and physical activity level using the phone. Every five minutes, the phone will record data from the onboard sensors, including GPS and Wi-Fi for location, and the accelerometer, magnetometer (compass) and gyroscope (orientation) to determine generally what you are doing (i.e. your physical activity levels). This will require no effort from you other than keeping the phone charged and with you as you normally would.
GPS directly records location when outdoors, or indoors in lower density (e.g., house) environments with an accuracy of around 10 meters. Wi-Fi can be used to estimate your position indoors to a similar accuracy if enough Wi-Fi routers are present. The accelerometer,
Your data will be uploaded to servers at the University of Saskatchewan. You can access all the data collected from your phone using an online dashboard at any time during and after the end of the study. The dashboard shows the data collected on your daily activity, your location history, and responses to the survey questions. As the development of the dashboard continues and additional analysis is included to it, you will have access to the new visualizations right away. Using the dashboard, you can also request to delete part or all of any data that you are uncomfortable reporting. Upon request, we will delete all specified data and no record or backup of the mentioned data will be held at any of the servers.
There are three potential risks for participating in this study. The first is the potential for us to observe you committing illegal acts as part of the ongoing experiment. While we will not be looking for anything like this, we may stumble across data that shows you in a bank during a robbery. We cannot guarantee your anonymity if we see a
The second potential risk is a loss of anonymity. All the data we collect will be strongly anonymized. However, there is the possibility that your data could be fully or partially de-anonymized due to the richness of the data we are collecting. By
The third potential risk is that phones may be lost, stolen or hacked. Your data on the phone is stored in a strongly encrypted manner until it is uploaded. You don’t have to worry about the data we are collecting if the phone is stolen or lost. Once the data has been uploaded it will be stored on secure servers at the University of Saskatchewan for a period of at least five years. When the data is no longer useful, it will be deleted.
If you have questions about this research study, please contact Brian Hansen at email@example.com.
The University of Calgary Conjoint Health Research Ethics Board has approved this research study (REB15-2686).